ELN Recommendation in CML Management: Do you understand?

Dear Friends,

Some of you might have full understanding about the ELN Recommendation in CML Management; but there might be too technical for some of our friends.

Jan, an active advocate from Germany sending me this updates today:

we are all aware that CML treatment guidelines, and milestones to be achieved by patients when on TKI therapy, are often not well understood by patients. Some while ago, a workgroup of European CML patient groups, supported by BMS, have engaged to produce a patient-friendly summary of the ELN Recommendations for treatment and monitoring of CML. The group includes Felice, Mina, Euzebiusz, Tony, Jana, Giora, Jan de Jong, me, plus three CML experts.


On 9/22, we had published these patient-friendly summaries in English, German and Italian, which you can find here (both in HTML for online viewing, as well as PDF for printout):

http://www.cmladvocates.net/cmlsummary

Additional versions in Czech, Spanish and French are underway, but have not been published yet due to regulatory restrictions. I also assume we will update the summary documents, once updated ELN treatment recommendations will be published by the ELN in 2012.

I hope these prove helpful - feel free to re-use them as you like. Any feedback from your side would of course be very appreciated - also suggestions what we could do in the next revision.

Best wishes
Jan

For your reading, please visit here.

19 Oct - We remember Max

19 Oct is always the special day for all of us - Max's birthday.




Max touches so many of our life around the world, and here I would like to share a message from our dear friend from Malaysia, Anisah, deep from her heart:


Anisah Lim, Malaysia - October 19, 2011

"Dear Max Family On this earth, nothing is more precious than having a life and live it to the maximum no matter how brief it may be! Gracious is Our Lord! My family and I would like to extend our many many thanks and birthday wishes to Max who offered his life to God for the many many many lives out here in this world today. This precious gift God Sent through you the Max Family shall always be remembered by every life the the Max Family has touched and saved. Thank you so much. Syukur, Allahamdullillah! Anisah Lim"

To read more, you can visit The Max Foundation Website at www.themaxfoundation.org
or click here

Thank you for everyone of you out there - thank you for being together, thank you for giving yourself to your community, to the person in need, together, we will able to make it - improving lives of the people living with blood and rare cancers worldwide.

"GIVE SOAP – SAVE A CHILD" - You, can help to save life too!

Max Family from Malaysia is partnering with The Max Foundation to run this initiative in Malaysia too!


Do you know that an antibacterial soap can make a huge different to a child who is undergoing cancer treatment? It could save a life!

Every day, hundreds of children lose their fight with cancer due to infections. You can change that!

During the Month of October, the month of Maximize Life, we invite you to be part of our global project “Give Soap – Save A Child”, because, kids can rise above cancer too!


See here for details of project at The Max Foundation Website

Want to participate from local level?
Here is what you can do - click on the poster below.

Be part of us!