Tuesday, April 8, 2014

4th Patient Congress For People Living With Chronic Myeloid Leukaemia And Multiple Myeloma, 6 April 2014, Kuala Lumpur,

The Max Foundation Malaysia and Max Family Society Malaysia, in conjunction with the 2014 Malaysian Society of Haematology (MSH) Conference, held its 4th Patient Congress for people living with chronic myeloid leukemia (CML) and multiple myeloma (MM).

The Patient Congress featured educational sessions, support sessions, and opportunities for patients and caregivers to engage with physicians and with each other.

On April 6, 2014, over 80 people living with CML and MM attended the 4th Patient Congress at the Concorde Hotel, accompanied by caregivers, physicians and nurses. It was organized and facilitated by The Max Foundation Malaysia team, and held during MSH 2014. Max Family Society Malaysia, a local patient support group, was a co-organizer.

The Patient Congress featured a series of sessions to educate and inspire those in attendance, including several joint sessions and a concurrent session for diagnosis-specific education.

Topics included:

        Nutrition for patients
        Medication management and adherence – the best tool for empowerment is knowledge
        Safe Medication Saves Lives – know your medicine
        Treatment options for CML and newer drugs
        Bone health for MM patients

Sessions were conducted by the foremost experts from across Malaysia, and participants had opportunities to ask questions of each. The esteemed guest of honor was Y.Bhg. Dato’ Dr. Haji Azmi bin Sapie, Director of Medical Development Division in the Ministry of Health.

Speakers included:

        Dato Dr. Chang Kian Meng, National Head of Haematology Service and Head of Haematology Department, Hospital Ampang
        Dr. Haris Rahman, Haematologist at Sime Darby Medical Center
        Dr. Bee Ping Chong, Haematologist at University Malaya Medical Center
        Dr. Manmohan Singh, Orthopedist at Hospital Kuala Lumpur
        Ms. Tan Pei Lin, Pharmacist at University Malaya Medical Center
        Ms. Wong Wen Yin, Dietitian at Hospital Pantai Kuala Lumpur

Through this recurring Patient Congress, those living with CML and MM in Malaysia have had opportunities to expand their knowledge about their disease, learn about new treatments, ask questions of experts, meet others coping with the same things, and exchange experiences through networking with fellow participants.
Through these Congresses we hope that patients and caregivers will be empowered to take control of their treatment and their lives. This Patient Congress has served an important role and we – The Max Foundation, Max Family, and the participants as well as healthcare team hope to continue it into the future.

We would like to extend our special thanks to the everyone who has came together to make this congress a success - participants, speakers, Malaysian Society of Haematology, volunteers, organizing team as well as the VIPs who have spent the morning with us. 

Also not forgetting the sponsors of the 4th Patient Congress. This Congress was made possible through generous educational grants provided by Novartis, Janssen and Pharm-D.

For more photos of the day, visit Max Family facebook at https://www.facebook.com/maxfamilymalaysia

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