Sunday, July 27, 2014

Education Sessions in Video Recording are now available! 4th Patient Congress For People Living With CML & MM, 6 April 2014, Kuala Lumpur,

So, most you might still remember about this event - The 4th Patient Congress for People Living with CML & MM that we have had organized back in April 2014, in Kuala Lumpur.

Here is the report of the day, 4th Patient Congress, April 2014

To enjoy more photos, visit Max Family facebook at  photos at MF facebook

We are very proud of everyone of the participants who came to the congress and contributed to the successful day. Of course not forgetting our speakers, our organizers, our volunteers and the sponsors.

If you have missed out the day, we have made the recording of the education session and have uploaded in The Max Foundation youtube channel for everyone. Do take your time to listen, I am sure a lot of learning will take place.

Here are the links to the education session recording:

(A) For both CML & MM
  • Nutrition and Me, by Dietitian, Ms Wong Wen Yin. Click here for video
  • Safe Medication, Saves Lives: Empowering Patient's Roles through Medication Management
    • What happen when you take your medicine? by Dr Hari Rahman, Haematologist. Click here for video
    • Safe Medication Saves Lives, from pharmacist's perspective; by Ms Tan Pei Lin, Pharmacist. Click here for video

(B) For CML 

  • New Drugs: Lessons learned from a Marriage of CML & TINIBs, by Dato Dr Chang KM, Haematologist. Click here for video

(C) For MM 
  • My Bone is Aching: Living with Myeloma, by Dr Bee Ping Chong, Haematologist. Click here for video
  • Maintaining Bone Health while LIving with Myeloma, by Dr Manmohan Singh, Orthopaedia Spine Surgeon. Click here for video

Enjoy and happy learning!

Sunday, May 11, 2014

Wishing all the mother - a happy Mother's Day, and you are just amazing!

To all the mothers out there, you are just amazing! 

Salute to this mother, whom we have met in Kuching yesterday, who have providing endless love and care to her little champion; and to all the mothers out there - you guys are amazing!

May Maximo, the little sparrow yet courage, be with you everyone in living the life beyond cancer.

For more updates about Max Family's activities in patient support and advocacy, you can visit our facebook page at Max Family Society Malaysia Facebook
Do click like so you will be receiving update notification on all the posts.

Sunday, May 4, 2014

Sambung Sekolah: Month-3 since project launched in Feb 2013

Updates as of end April 2014:
  • With our adopters’ generosity and trust, we have enrolled 6 cases in Sambung Sekolah since the launch date (February 2014).
  • With our adopters’ generosity and trust, these children are able to continue schooling, while their parent (either mother or father) is receiving blood cancer treatment.

We are working closely with partner physicians and also the approved subjects, in making sure children are continue schooling, and the family is being supported within our capacity.

To our adopters who have adopted the cases – thank you for your generosity, and we will provide summary feedback on status of your adopted cases on annual basis.

For potential adopter who have not been approached by us, do not worry. We will reach out to you once we have an identified subject (case), and will work with you on adopting process.

To know more about Sambung Sekolah, you can visit 

Tuesday, April 8, 2014

4th Patient Congress For People Living With Chronic Myeloid Leukaemia And Multiple Myeloma, 6 April 2014, Kuala Lumpur,

The Max Foundation Malaysia and Max Family Society Malaysia, in conjunction with the 2014 Malaysian Society of Haematology (MSH) Conference, held its 4th Patient Congress for people living with chronic myeloid leukemia (CML) and multiple myeloma (MM).

The Patient Congress featured educational sessions, support sessions, and opportunities for patients and caregivers to engage with physicians and with each other.

On April 6, 2014, over 80 people living with CML and MM attended the 4th Patient Congress at the Concorde Hotel, accompanied by caregivers, physicians and nurses. It was organized and facilitated by The Max Foundation Malaysia team, and held during MSH 2014. Max Family Society Malaysia, a local patient support group, was a co-organizer.

The Patient Congress featured a series of sessions to educate and inspire those in attendance, including several joint sessions and a concurrent session for diagnosis-specific education.

Topics included:

        Nutrition for patients
        Medication management and adherence – the best tool for empowerment is knowledge
        Safe Medication Saves Lives – know your medicine
        Treatment options for CML and newer drugs
        Bone health for MM patients

Sessions were conducted by the foremost experts from across Malaysia, and participants had opportunities to ask questions of each. The esteemed guest of honor was Y.Bhg. Dato’ Dr. Haji Azmi bin Sapie, Director of Medical Development Division in the Ministry of Health.

Speakers included:

        Dato Dr. Chang Kian Meng, National Head of Haematology Service and Head of Haematology Department, Hospital Ampang
        Dr. Haris Rahman, Haematologist at Sime Darby Medical Center
        Dr. Bee Ping Chong, Haematologist at University Malaya Medical Center
        Dr. Manmohan Singh, Orthopedist at Hospital Kuala Lumpur
        Ms. Tan Pei Lin, Pharmacist at University Malaya Medical Center
        Ms. Wong Wen Yin, Dietitian at Hospital Pantai Kuala Lumpur

Through this recurring Patient Congress, those living with CML and MM in Malaysia have had opportunities to expand their knowledge about their disease, learn about new treatments, ask questions of experts, meet others coping with the same things, and exchange experiences through networking with fellow participants.
Through these Congresses we hope that patients and caregivers will be empowered to take control of their treatment and their lives. This Patient Congress has served an important role and we – The Max Foundation, Max Family, and the participants as well as healthcare team hope to continue it into the future.

We would like to extend our special thanks to the everyone who has came together to make this congress a success - participants, speakers, Malaysian Society of Haematology, volunteers, organizing team as well as the VIPs who have spent the morning with us. 

Also not forgetting the sponsors of the 4th Patient Congress. This Congress was made possible through generous educational grants provided by Novartis, Janssen and Pharm-D.

For more photos of the day, visit Max Family facebook at

Thursday, February 6, 2014

1st announcement: 4th Patient Congress for People Living with Blood Cancers - CML & MM on 6 April 2014

Mark your date - 6 April 2014 (Sunday)!
8.30am - 4.00pm
Kuala Lumpur

Yes, The MAX Foundation, supported with Max Family Society Malaysia and Malaysian Society of Haematology are organizing the Patient Congress for People Living with Blood Cancer again this year.

If you are living with Chronic Myeloid Leukemia and Multiple Myeloma, do not miss this congress!

Click the flyer to take a closure look at the details.
Registration starts today, and closes on 17 March 2014. 

To register, please fill up 4th Patient Congress 2014 Registration Form. 
You can click here to download the registration form.

Seat for this congress is limited. It works on first-come-first-served basis.

Call MAX Malaysia office at 03-7726 9903 or write to us at

Tuesday, February 4, 2014

First 4 Cases Enroled in Sambung Sekolah on 4th February 2014, in conjunction with World Cancer Day!

Yes! The project team has enrolled the first four children in Sambung Sekolah today!

In conjunction with World Cancer Day 2014, we have made this happen – we have enrolled our first case in Sambung Sekolah, today.

In fact, not only first case. It is first FOUR cases.

With the effort from our key project team and partnering doctors, as well as the great support and trust from the fellow potential donors, we have moved the “dream” of Sambung Sekolah into an action, and real project.

We are happy to share key milestones and the current update status here:

We thank you, the adopters (individual from our community), in helping us, in putting Sambung Sekolah together.

For Potential Adopter who have not been approached by us, do not worry. We will reach out to you once we have an identified Subject (case), and will work with you on adopting process.

Notes: Coordinator is reaching out to Potential Adopter (people who has completed Borang 5 & returned to coordinator) base on chronological order (whoever signed up as potential adopter first will be appear at first on our list).

*             *             *             *             *
Cancer changes one’s life. 

While our partner doctors are treating the patient, we would want to let the needy patient aware that Sambung Sekolah is supporting their children to continue schooling.

Sambung Sekolah is initiated by Haematology Department (Hospital Ampang), The MAX Foundation and Max Family Society Malaysia; aiming to support children of cancer patients to continue schooling.

To know more about Sambung Sekolah, you can visit About Sambung Sekolah and Do not let them drop out from school

Monday, February 3, 2014

4th February - World Cancer Day

Counting Down - 1 more day to World Cancer Day, 4th February.

This year’s WCD theme is “Debunk the Myths”, and it focuses on Target #5 of the World Cancer Declaration: Dispel damaging myths and misconceptions about cancer. The campaign will center on the following myths and their related truths about cancer:

MITOS: Kita tidak bincang tentang kanser.
HAKIKAT: Walaupun kanser kadang-kala menjadi satu isu yang susah untuk disuarakan secara terbuka di sesetengah masyarakat, namun dengan membincangkan isu ini secara terbuka boleh membantu individu dan masyarakat mengatasi masalah ini dengan lebih baik dan berkesan.


在某些地方,癌症依然是一个禁忌话题。 有些人或许会认为癌症是难以启齿的疾病,但我们必须明白,只有通过坦诚的谈话和交流, 我们才能一起找到有效的办法,协助患者抗癌,进而为社区作出改变。让我们一起打破癌症的迷思

MITOS: Kanser tidak mempunyai sebarang tanda-tanda atau gejala.
HAKIKAT: Kebanyakan jenis kanser mempunyai tanda-tanda dan gejala di peringkat awal. Oleh itu pemeriksaan awal untuk mengesan kanser adalah penting dan tidak boleh dipandang remeh.



MITOS : Tiada apa pun yang boleh dilakukan dengan kanser.
HAKIKAT : Satu pertiga daipada kanser yang biasa dihidapi adalah boleh dicegah. Banyak perkara yang boleh dilakukan kepada individu dan masyarakat dengan pendekatan yang betul.



MITOS: Saya tidak ada hak untuk mendapat rawatan kanser.
HAKIKAT: Semua orang mempunyai hak yang sama untuk mendapat rawatan kanser yang tepat dan berkesan tanpa sebarang kesulitan.


您是否怀疑自己或他人无法获得癌症治疗? 事实上,癌症面前,人人平等。每个人都有权利通过正确的途径得到有效的治疗

Cancer touches everyone, direct or indirectly. 
Click for more information. Check out how you can be involved.

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