Monday, December 22, 2014

Sambung Sekolah: A Big THANK YOU and Moving Forward



2014 is coming to the end and we wish all of you have a good 2015 ahead.

We would like to take this opportunity to thank all of you who expressed interest in Projek Sambung Sekolah and signed up as potential adopter for children who face difficulty to continue schooling when one of the parent is down with serious illness like cancer. 

Many of you have not been assigned to a needy child, this is not because we have stop the program, rather we were running it as a pilot project since Feb 2014 with intention to start small in the first year, to ensure the feasibility and to modify the process as needed so it can be run smoothly.

We have successfully supported 7 children from 3 families since the launch of the project in Feb 2014. Now we are convinced that the project is workable, and it does benefit the children and their families. We are glad to announce that the project is going to continue into 2015 and we plan to expand our recruitment to help more needy children, we are expanding this to the other state hospitals providing service for blood cancers in both sides of Malaysia across South China Sea.


Please find the updated status of Projek Sambung Sekolah in attached flyers. 









































We will contact you once we get children needing assistance when they are referred by the treating doctors. Please do not hesitate to email us should you need further clarification.

Again, we thank all of you for the support, and we look forward to make this project a successful one in the future.


Best Regards,

Project Partners: Max Family Society Malaysia, The Max Foundation & Haematology Department Hospital Ampang 

Wednesday, October 1, 2014

9 22 - World CML Day in Malaysia during September 2014

So yes, during the month of September, we honoured World CML Day with our friends, families, physicians and their team as well as volunteers. 

We had two events where we celebrate the day and honour life together with our patient groups - one in Kelantan on 20 Sept, and the other one in Sabah on 27 Sept. 





What is your word for CML? 

On top of the events, we also asked our friends and families who would they say about CML besides as Chronic Myeloid Leukaemia. We ended up received a great response from people around this country as well as around the world!





Do check out Max Family Society Malaysia facebook page for more updates and feel the energy! See you there!

Friday, August 1, 2014

Projek Sambung Sekolah as of July 2014 : Month-6 update since project launching in February 2014


“We believe adequate education is an important element to maximize the achievement of an individual in life and we also believe that no-one should be denied the opportunity for education when a family member is affected by major illnesses including cancer.”



Thus we initiated Sambung Sekolah, hoping to benefit the needy families, especially children of cancer patients to prevent them from discontinue schooling due to financial constraint.



Sambung Sekolah was launched in February 2014, in conjunction with World Cancer Month. 
It now 6-months old, and we are proud to keep everyone updates of the progress:

  • subjects are enrolled thus far, all 7 of them are still in this project.
  • Coordinator team is in touched with the subject’s families as well as their treating physicians on at least monthly basis.
  • Positive response and feedback received from subjects, families as well as treating physicians.

  




The coordinators and the partnering physician team are evaluating the pilot project progression at the moment, and we are working to expand this project and its sustainability after one year’s pilot run.


We thank you – all the supporters, who are supporting this project, do stay tune and we will keep you update about Sambung Sekolah.




Sunday, July 27, 2014

Education Sessions in Video Recording are now available! 4th Patient Congress For People Living With CML & MM, 6 April 2014, Kuala Lumpur,

So, most you might still remember about this event - The 4th Patient Congress for People Living with CML & MM that we have had organized back in April 2014, in Kuala Lumpur.



Here is the report of the day, 4th Patient Congress, April 2014

To enjoy more photos, visit Max Family facebook at  photos at MF facebook

We are very proud of everyone of the participants who came to the congress and contributed to the successful day. Of course not forgetting our speakers, our organizers, our volunteers and the sponsors.

If you have missed out the day, we have made the recording of the education session and have uploaded in The Max Foundation youtube channel for everyone. Do take your time to listen, I am sure a lot of learning will take place.

Here are the links to the education session recording:


(A) For both CML & MM
  • Nutrition and Me, by Dietitian, Ms Wong Wen Yin. Click here for video
  • Safe Medication, Saves Lives: Empowering Patient's Roles through Medication Management
    • What happen when you take your medicine? by Dr Hari Rahman, Haematologist. Click here for video
    • Safe Medication Saves Lives, from pharmacist's perspective; by Ms Tan Pei Lin, Pharmacist. Click here for video

(B) For CML 

  • New Drugs: Lessons learned from a Marriage of CML & TINIBs, by Dato Dr Chang KM, Haematologist. Click here for video

(C) For MM 
  • My Bone is Aching: Living with Myeloma, by Dr Bee Ping Chong, Haematologist. Click here for video
  • Maintaining Bone Health while LIving with Myeloma, by Dr Manmohan Singh, Orthopaedia Spine Surgeon. Click here for video

Enjoy and happy learning!


Sunday, May 11, 2014

Wishing all the mother - a happy Mother's Day, and you are just amazing!

To all the mothers out there, you are just amazing! 

Salute to this mother, whom we have met in Kuching yesterday, who have providing endless love and care to her little champion; and to all the mothers out there - you guys are amazing!

May Maximo, the little sparrow yet courage, be with you everyone in living the life beyond cancer.

For more updates about Max Family's activities in patient support and advocacy, you can visit our facebook page at Max Family Society Malaysia Facebook
Do click like so you will be receiving update notification on all the posts.


Sunday, May 4, 2014

Sambung Sekolah: Month-3 since project launched in Feb 2014


Updates as of end April 2014:
  • With our adopters’ generosity and trust, we have enrolled 6 cases in Sambung Sekolah since the launch date (February 2014).
  • With our adopters’ generosity and trust, these children are able to continue schooling, while their parent (either mother or father) is receiving blood cancer treatment.

We are working closely with partner physicians and also the approved subjects, in making sure children are continue schooling, and the family is being supported within our capacity.

To our adopters who have adopted the cases – thank you for your generosity, and we will provide summary feedback on status of your adopted cases on annual basis.

For potential adopter who have not been approached by us, do not worry. We will reach out to you once we have an identified subject (case), and will work with you on adopting process.

To know more about Sambung Sekolah, you can visit 

Tuesday, April 8, 2014

4th Patient Congress For People Living With Chronic Myeloid Leukaemia And Multiple Myeloma, 6 April 2014, Kuala Lumpur,

The Max Foundation Malaysia and Max Family Society Malaysia, in conjunction with the 2014 Malaysian Society of Haematology (MSH) Conference, held its 4th Patient Congress for people living with chronic myeloid leukemia (CML) and multiple myeloma (MM).

The Patient Congress featured educational sessions, support sessions, and opportunities for patients and caregivers to engage with physicians and with each other.


On April 6, 2014, over 80 people living with CML and MM attended the 4th Patient Congress at the Concorde Hotel, accompanied by caregivers, physicians and nurses. It was organized and facilitated by The Max Foundation Malaysia team, and held during MSH 2014. Max Family Society Malaysia, a local patient support group, was a co-organizer.

The Patient Congress featured a series of sessions to educate and inspire those in attendance, including several joint sessions and a concurrent session for diagnosis-specific education.

Topics included:

        Nutrition for patients
        Medication management and adherence – the best tool for empowerment is knowledge
        Safe Medication Saves Lives – know your medicine
        Treatment options for CML and newer drugs
        Bone health for MM patients

Sessions were conducted by the foremost experts from across Malaysia, and participants had opportunities to ask questions of each. The esteemed guest of honor was Y.Bhg. Dato’ Dr. Haji Azmi bin Sapie, Director of Medical Development Division in the Ministry of Health.

Speakers included:

        Dato Dr. Chang Kian Meng, National Head of Haematology Service and Head of Haematology Department, Hospital Ampang
        Dr. Haris Rahman, Haematologist at Sime Darby Medical Center
        Dr. Bee Ping Chong, Haematologist at University Malaya Medical Center
        Dr. Manmohan Singh, Orthopedist at Hospital Kuala Lumpur
        Ms. Tan Pei Lin, Pharmacist at University Malaya Medical Center
        Ms. Wong Wen Yin, Dietitian at Hospital Pantai Kuala Lumpur

Through this recurring Patient Congress, those living with CML and MM in Malaysia have had opportunities to expand their knowledge about their disease, learn about new treatments, ask questions of experts, meet others coping with the same things, and exchange experiences through networking with fellow participants.
Through these Congresses we hope that patients and caregivers will be empowered to take control of their treatment and their lives. This Patient Congress has served an important role and we – The Max Foundation, Max Family, and the participants as well as healthcare team hope to continue it into the future.

We would like to extend our special thanks to the everyone who has came together to make this congress a success - participants, speakers, Malaysian Society of Haematology, volunteers, organizing team as well as the VIPs who have spent the morning with us. 

Also not forgetting the sponsors of the 4th Patient Congress. This Congress was made possible through generous educational grants provided by Novartis, Janssen and Pharm-D.

For more photos of the day, visit Max Family facebook at https://www.facebook.com/maxfamilymalaysia


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