Monday, September 24, 2018

World CML Day Celebration


In view of World Chronic Myeloid Leukemia (CML) Day which falls on 22/9, for the past two weeks, CML patients and volunteers from Max Family Society Malaysia had taken the opportunity to celebrate the doctors who have been doing a great job in providing medical and emotional assistance in helping the CML patients to manage their condition. The doctors were treated to some good food, and gifts were distributed to them as a token of appreciation.   


During the celebration, patients and volunteers also brought up the topic of disease monitoring for discussion with the doctors. In CML, PCR test is one of the most important test that detect, and sometimes to quantify, Bcr-Abl (indicator of CML) in bone marrow cells of patients with CML It's a fruitful discussion as patients get to hear from the doctors the importance of the test, how frequent the test should be carried out and what can be done to raise awareness about the importance of PCR monitoring test.

Wednesday, July 11, 2018

RECAP: WHAT'S BIG IN APRIL - JUNE 2018?


                               
Let's Sama-Sama CML Penang, 29 April 2018

Something different for Let's Sama-Sama this year in Penang as we had our patient-doctor meeting at a food court by the beach side for the first time ever! Standing next to the beach, we did some warm up exercise following the lead of 2 volunteers before we proceed with the sharing session with the doctors. 3 doctors from Hospital Pulau Pinang were kind enough to join us at this meeting and each lead a group discussion with the patients on issues related to CML. Doctors and patients were also treated to some local Penang food that we prepared after the meeting. So happy to see everyone going back with better understanding on CML and a stomach full of good food! 
                               
Best Max Crew Penang 2018

Best Max Crew Penang 2018 Award goes to Pey Jiuan, who is not a cancer patient herself nor a cancer patient caregiver, but has volunteered her time over the past few years with Max Family serving the cancer patient community. 
                               
Let's Sama-Sama CML Kuantan, 30 June 2018

After 3 years, we finally got the chance to hold a patient-doctor meeting again in Kuantan. The meeting was held at Hospital Tengku Ampuan Afzan with 2 hematologists and a dietitian as the guest speakers. Topics such as diet for a CML patient, side effect management, family planning and social stigma were addressed during the group discussion with the hematologists. Patients were tested for the knowledge about CML with a quiz after the session with the doctors and the winners won themselves some snacks as a gift. It was good to see new patients drawing strength from meeting like this and to meet some familiar faces again after 3 years!   
                               
Best Max Crew Kuantan 2018

Cikgu Sidek, who is the father of his son, a CML survivor, has won the Best Max Crew Kuantan 2018 Award. He is the patient group leader in Kuantan and has been helping Max Family in organizing patient-doctor meetings and other activities in Kuantan for many years. 

Friday, April 6, 2018

Best MAX Crew of Kuala Lumpur 2018





Since joining Max Family few years back, Encik Abu has been a very supportive member. He gave valuable feedback during group meetings, attended conferences and media interviews as a patient advocate, helped out and eventually coordinated patients workshop. As a recognition of his effort and contribution, we decided that Encik Abu deserves the BEST MAX CREW OF KUALA LUMPUR award. On behalf of the patient community, we would like to thank you for your generousity and hardwork, Encik Abu. You're a champ!!! 🏆

Friday, October 27, 2017

Max Crew of The Month: October 2017





We are honored to have Annie Lee from JB as our Max Crew of The Month! She has been with us for about 8 years, working side-by-side with the rest of JB Max Crew. From a patient that used to have doubts, now Annie is a reliable Max Crew.

“You want to know what the best part of volunteering is. It is when patients walk away from the gatherings with a better understanding of their disease, their doubts and concerns addressed, and their questions being answered,” said Annie.

Being a CML survivor herself, she could relate to other patients. Seeing these patients have fun at casual Let’s Sama-Sama and making new friends, all of that give her satisfaction. Now she knows the patients will not be alone.

Annie is involved in the event preparation activities. She is also one of the key persons that organize and support the activities in JB. She describes herself as a low-profile person and she finds enjoyment in working behind the scenes.

Her 8 years of contribution inspired by the belief that knowledge is an empowerment for patients. She is always ready to help out to ensure these patients being benefited from the knowledge sharing be it from the doctors or fellow survivors.

As for us here in Max Family, we are grateful to have an empathetic Max Crew like her, we know we can touch more patients.